Последние добавленные видео:
bainbridge-ropers
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3 г. назад
3670 3 г. назад 2:01What is Bainbridge-Ropers Syndrome?
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6 л. назад
771 6 л. назад 4:11Changemaker: Former UW golfer creates Leo’s Lighthouse to raise awareness of son’s ultra rare co
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1 г. назад
3637 1 г. назад 21:01STORYTELLERS: MEET MY FRIENDS FROM SCOTLAND AND LEARN MORE ABOUT ASXL3 (BAINBRIDGE-ROPERS SYNDROME)
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2 г. назад
333 2 г. назад 1:01Welcome to the ASXL-related disorder community
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2 г. назад
954 2 г. назад 57:53ASXL3/Bainbridge-Ropers Syndrome family updates with Dr. Meena Balasubramanian
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4 г. назад
264110 4 г. назад 5:27US teen develops app to help his disabled sister talk - BBC News
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4 мес. назад
74 4 мес. назад 12:02Fireside chat: Understanding the path to ASXL treatments
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4 г. назад
1264 4 г. назад 1:23:012021 ASXL Family Conference: ASXL3/Bainbridge-Ropers Syndrome session
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2 г. назад
14267 2 г. назад 9:38His Sister Is Nonverbal, So He Created An App to Help Her Communicate
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4 г. назад
3559 4 г. назад 3:54BRS Awareness for Rare Disease Day 2022
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5 л. назад
1075 5 л. назад 6:04🍎Florence - Quand le syndrome de Bainbridge Ropers est arrivé dans ma vie (ep1)- France - (FR 2020)
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3 г. назад
3632 3 г. назад 2:34Bay Area mom scammed over medical grade formula for 11-year-old with rare disease
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1 г. назад
47 1 г. назад 1:46Amy Brady: Biotech PhD Student Project
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5 л. назад
38 5 л. назад 3:23Florence - France - Bainbridge-Ropers - behavorial psychology & communication (ep6)(EN ST 2020)
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4 г. назад
621 4 г. назад 19:33Introduction to ASXL-related disorders