Rare Disease Research with All of Us скачать в хорошем качестве

Rare Disease Research with All of Us

The All of Us Research Program is building one of the largest health databases to power new research. To do this, we’re asking one million or more people from across the United States to share health information. This type of research is especially important for rare diseases, where smaller numbers of patients make research harder. With health information from more people living with rare diseases – and family members without the condition – researchers can better study which genetic differences affect health, how they are passed down, and why the same condition can affect relatives in different ways. The data we gather from participants will be stored securely in a database. Approved researchers can access this data to explore how factors like environment, lifestyle, and genes can impact health. What they learn could lead to individualized prevention, treatment, and care for all of us. To learn more about the All of Us Research Program, visit JoinAllofUs.org.