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Connect with a specialist: http://bit.ly/2DNuT7A Our Single Ventricle Program: http://bit.ly/2DPF5MQ The Heart Center: http://bit.ly/2DLnntQ “Doctor Galantowicz sat down and got out a piece of paper and drew a heart, like a diagram. He explained how the heart works and then he gently told us that our son would be born with something called Hypoplastic Left Heart Syndrome. And I’ve never been so terrified.” This was the first of many conversations that Christina Nicholas and her husband, Ben, would have with Dr. Mark Galantowicz, Chief of Cardiothoracic Surgery at Nationwide Children’s Hospital, before the arrival of their new baby, Knox. Hypoplastic Left Heart Syndrome (HLHS) is one of the most complex congenital heart defects in newborns. It occurs when the left side of the heart doesn’t develop as it should during the first eight weeks of pregnancy. The left side of the heart is responsible for pumping blood to the body. For children born with HLHS, the right side of the heart must work overtime to pump blood to the lungs and then out to the rest of the body. As Christina and Ben awaited baby Knox’s arrival, their anticipation was replaced by fear which led to days of extensive HLHS research in the weeks before they delivered. “We read article after article and Dr. Galantowicz’s name kept coming up. We soon realized that we had the leader of single ventricle care right here in our backyard. Dr. Galantowicz and his team at The Heart Center had pioneered a treatment that was less invasive and would delay open heart surgery until our baby was bigger, stronger and better able to recover from it.” That procedure, known as the Hybrid approach, is performed during the first week of life. The goal is to balance circulation and protect the lungs from being bombarded by pressure and blood flow. It was the option that Christina and Ben hoped would put their baby on the road to recovery. Baby Knox was born on a warm Tuesday in November. Minutes after he arrived, he was taken by ambulance to Nationwide Children’s where a team was waiting to put his treatment strategy into action. Days later, Knox’s first heart surgery began in the specialized Hybrid suite designed at Nationwide Children’s. “Walking down to the OR was just kind of surreal. But we felt really comforted that Dr. Galantowicz was going to be doing the surgery and he was so confident in Knox’s outcome that we just knew everything was going to be okay.” And it was. Knox’s Hybrid procedure was successful and two weeks later the Nicholas family would head home for the first time - together. While Knox’s long-term care plan involves additional surgeries and regular checkups at The Heart Center, his family’s short-term plan is pretty simple - soaking up every moment and celebrating every milestone. Baby Knox. One of about 40,000 children who will be born with a congenital heart defect in the United States this year. One of roughly 1,000 babies born with Hypoplastic Left Heart Syndrome in 2017. One of hundreds of tiny heart patients at Nationwide Children’s Hospital - where every kid is one of a kind. Meet Dr. Mark Galantowicz: http://bit.ly/2DS0XqM Go inside the cardiac operating room: http://bit.ly/2DLohXg Watch 3D Animations explaining Hypoplastic Left Heart Syndrome: http://bit.ly/2DNbHXH