Stromme Syndrome Q&A -- Everything You've Ever Wanted to Know! скачать в хорошем качестве

Stromme Syndrome Q&A -- Everything You've Ever Wanted to Know!

In today's video, I spend some time answering the most frequently asked questions I receive about Strømme Syndrome and Ruby. Also, I talk about how we decided to bring Stella into our lives. Look below for timestamps for all of the questions! 01:45 - When and how did you find out Ruby had Stromme Syndrome? 04:38 - How does Stromme Syndrome affect Ruby's senses? 06:50 - What is Apple Peel Atresia? 08:03 - What is most difficult about being Ruby's mom -- then and now? 10:19 - What special education and therapies is Ruby in? 10:40 - What milestone are you most proud of in Ruby's development? 11:06 - Do you think Ruby understands the differences between her and her peers? 11:14 - Do you worry about Ruby being bullied for her differences? 12:03 - What are Ruby's interests and what makes her happiest? 12:44 - How did you get Stella and how has she impacted Ruby's life? 14:40 - How much research is being done on Stromme Syndrome? 15:49 - What level of privacy do you maintain for Ruby? 16:55 - Does Stromme cause a shorter life expectancy? 17:22 - Is Ruby's vision getting better or worse? 17:46 - If there was one thing you could say to the world about Stromme, what would it be? 18:11 - What's your main message in all of your advocacy efforts? Continue the conversation on our other social channels: Instagram:   / angieandruby   Facebook:   / angieandruby   Twitter:   / angieandruby   Music by IKSON   / ikson