ASMD Facts Chapter 5: How Can You Take Charge of Your ASMD? скачать в хорошем качестве

ASMD Facts Chapter 5: How Can You Take Charge of Your ASMD?

Receiving an ASMD (acid sphingomyelinase deficiency) diagnosis may seem overwhelming, but you are not alone in your experience. Each person’s journey with ASMD is unique, but the feelings of frustration, isolation, and sadness you may have are normal. Support resources are available for people who have been diagnosed with ASMD and their caregivers. In this video, you’ll meet Evren, a young man living with ASMD, and his mother, Kara. Check it out to learn more about how ASMD is inherited. For more information on ASMD and resources for patients and caregivers, visit www.asmdfacts.com/stay-up-to-date and sign up to receive additional information and updates. You can also speak with a Patient Education Liaison (PEL) Monday – Friday, 8 am – 8 pm ET by calling 1-800-745-4447, Option 3 for Patient Services, then press 1 ‘for more information on ASMD.’ MAT-US-2106594-v2.0-02/2024