CF Foundation | Reproductive Health in Cystic Fibrosis скачать в хорошем качестве

CF Foundation | Reproductive Health in Cystic Fibrosis

As more people with cystic fibrosis are living longer and healthier lives, they increasingly face questions about their reproductive futures. Plenary 3 of the North American Cystic Fibrosis Conference features the experiences of people with CF and provides an overview of key research on reproductive health in CF and implications for CF care delivery. Molly Pam, an adult with cystic fibrosis, highlights community engagement in this work and personal family-building decisions. Raksha Jain, MD, reviews fertility and pregnancy among people with CF. Traci Kazmerski, MD, explores the interplay between CF and reproductive health decisions and implications for CF clinical care. Livestreamed from NACFC 2024 in Boston, Massachusetts September 28, 2024. 00:00 | Reproductive Health in Cystic Fibrosis 00:31 | CF Foundation Chief Medical Officer Albert Faro, MD, welcomes the audience to Plenary 3 01:42 | CF Foundation Senior Director of Partnerships for Sustaining Daily Care Cynthia George presents the Mary M. Kontos Care Champion Awards to Monica Ulles and Jill Fliege 07:20 | Cynthia George presents the Carolyn and C. Richard Mattingly Award to Mary Beth Prieur, PhD 09:54 | Albert Faro, MD, introduces Plenary 3 15:02 | Molly Pam discusses her experience with reproductive health as a person with cystic fibrosis 20:10 | VIDEO: People with CF discuss their reproductive health decisions 24:56 | Raksha Jain, MD, discusses fertility and pregnancy in people with cystic fibrosis 26:34 | Fertility in females with CF 32:15 | What options are there for contraception? 36:14 | Reviewing the MAYFLOWERS study 41:50 | CFTR Modulators: Infant exposure risks 45:55 | Male fertility in CF 49:10 | Modulators and fertility in males with CF 51:00 | Reviewing the PRIDE CF study 53:06 | Traci Kazmerski, MD, discusses reproductive health decisions and communication in people with CF 54:14 | What are family-building options for people with CF? 58:08 | Reviewing the HOPeCF study 1:00:26 | How are we doing at addressing reproductive health for people with CF? 1:05:24 | When should we begin the discussions of reproductive health in people with CF? 1:06:30 | Reproductive health resources for people with CF 1:09:20 | How do we optimize communication between people with CF and providers? 1:15:29 | Molly Pam discusses progress and hope in reproductive health in people with CF 1:16:10 | How Molly’s decision-making process evolved 1:17:43 | Molly introduces her daughter, Lilah 1:18:14 | CF Foundation President and CEO Michael Boyle, MD, closes out the conference 1:18:54 | VIDEO: Highlights from NACFC 2024