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"What are we supposed to worry about?" Recently Kate spoke with a Father whose child was newly diagnosed with NF1 and this was his primary question. In this video, Kate reviews three common manifestations of NF1 that generally are not a sign of a more serious issue: freckling, large head size, and lisch nodules. To enable Closed Captioning, click the CC button. What is the Children's Tumor Foundation? Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors. Visit our website at https://www.ctf.org/ Donate today at https://www.ctf.org/ways-to-give/ Follow us on our social media platforms: Facebook - / childrenstumor Instagram - / childrenstumor Twitter - / childrenstumor LinkedIn - / children's-tumor-foundation #endnf #nf1 #nf2 #nf2swn #swn #childrenstumor #neurofibromatosis #schwannomatosis #nervetumor #tumor