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Julia Rae was born with cystic fibrosis… and born to sing. “I always say that singing and performing was as much a part of my DNA as cystic fibrosis. I knew from a very young age that that is what I wanted out of life. My mom always tells the story that I watched Barney singing and dancing and asked her how I get in there and do that with him at the age of two.” As she grew, Julia turned her voice into a mission. At just 16, she founded Singing at the Top of My Lungs, a nonprofit created to uplift children in hospitals through music and art therapy. “Initially we were devoted partially to CF research and also supporting Child Life and music and art therapies at Children’s Hospitals... I’ve decided to devote all the Singing at the Top of My Lungs to music and creative art therapies. They are significantly underfunded… and honestly the unsung heroes of children’s hospitals.” Today, Julia is not only an actress, singer, and podcast host — she’s a powerful voice in the chronic disease field, using her platform to heal, inspire, and advocate. A powerful voice in the chronic illness field.