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An overwhelming majority of people with Parkinson’s disease and Lewy Body Dementia rely on unpaid caregiving from family members, with limited research on the impact on the caretaker’s well-being. Join us for an exploration of the challenges faced by caretakers of those living with PD and LBD and a discussion on how to best support these individuals. This program was recorded on March 12, 2025. www.pcla.org. ----------------------------------------------------------------------------------------------------------------------- Timestamps: 00:00 Intro 00:55 Speaker Intro 04:16 What is Lewy Body Dementia? 05:20 PD, DLB, & LBD 09:09 Probably DLB 13:16 DLB: Core Clinical Features 15:58 Triggers for hospitalization 18:58 What do we know about LBD caregivers? 28:08 Home Visit 35:00 Peer mentoring in other conditions 37:35 Home visit intervention 40:03 PD Caregiver peer mentoring feedback 41:09 Learning to persevere 44:23 Mentor training & support 46:24 What information do caregivers want? 47:42 Health literacy-friendly materials & resources 50:37 Human connection & empowering 51:46 Applying community-based participatory research 53:46 Persevere video 54:41 A research study designed for you 56:24 Survey interactions 58:06 Conclusions 59:07 Acknowledgements 59:43 Q&A 01:02:56 Closing ----------------------------------------------------------------------------------------------------------------------- Connect with PCLA: 👉 Website: www.pcla.org 👉 PCLA Blog: https://pcla.org/blog/ 👉 Instagram: / parkinsons.la 👉 Facebook: / parkinsonscommunityla 👉 Twitter: / pdcommunityla Parkinson's Community Los Angeles is a non-profit organization. If you enjoyed this free program, please consider donating to PCLA on our website at https://pcla.org/donate/. PCLA's online events are intended as an informational and educational resource for the Parkinson's community. Always consult with your healthcare team for medical and treatment advice. The views and opinions expressed by presenters and participants do not necessarily reflect those of PCLA. Sponsorship support does not influence PCLA's content perspective or panelist selection. #parkinsons #parkinsonsdisease #pcla