Hope Rather Than Tragedy: Eva’s Journey with Ultra-Rare Sarcoma скачать в хорошем качестве

Hope Rather Than Tragedy: Eva’s Journey with Ultra-Rare Sarcoma

"I don't think I'm that strong. I'm just stuck in this cycle... I feel like I'm forced to." At 16, Eva is living with Sclerosing Epithelioid Fibrosarcoma (SEF) -an ultra-rare form of sarcoma with fewer than 200 cases reported globally. For Eva and her family, the diagnosis felt like a "black hole" because there is currently no standard treatment for her condition. Donate to help fund the research that gives families like Eva’s hope: sarcoma.org.uk/hope In this film, created for the Sarcoma UK Glitter Ball, Eva and her parents, Jennifer and Paul, share the reality of living with the "loneliest cancer." Eva discusses her daily medical cycle and how her art - specifically her painting "Sacrifice and Hope"- provides a sense of purpose and a sanctuary of hope. In this video: The reality of an ultra-rare cancer diagnosis. Why standard chemotherapy often fails for SEF patients. The philosophy behind Eva’s auction painting, "Sacrifice and Hope" Why investment in genomic research is the only way to find new treatment options. About Sarcoma UK: Sarcoma UK is the only charity in the UK focusing on all types of sarcoma—cancer of the bone or soft tissue. We fund world-class science, offer support to those affected, and campaign for better treatments. Find out more sarcoma.org.uk Support Line: 0808 801 0401 #SarcomaUK #TheLoneliestCancer #RareCancer #SEF #CancerResearch #EvaRainey #TheLittleMermaid