OHC 2023 Rare Disease Day Webinar: Advancing Novel Therapies for Rare Diseases скачать в хорошем качестве

OHC 2023 Rare Disease Day Webinar: Advancing Novel Therapies for Rare Diseases

Individuals with rare diseases and their families typically have a long journey to a diagnosis with little hope for a cure. The Oxford-Harrington Rare Disease Centre, a partnership between the University of Oxford and Harrington Discovery Institute, brings together the resources and capabilities needed to accelerate novel treatments for patients living with a rare disease. A special rare disease day webinar was hosted on Monday, Feb. 27, 2023 in honor of Rare Disease Day to highlight the OHC’s mission and progress towards advancing cures for rare diseases. Rare disease research and drug discovery requires collaboration between patients, organizations, researchers and clinicians. Only then can treatments for the millions of people with a rare disease become a reality. The webinar included voices from all of these collective advocates, including: · Angela Russell, DPhil, University of Oxford: A 2021 Harrington UK Rare Disease Scholar, Dr. Russell shared her experience as a Scholar advancing a novel treatment for Duchenne Muscular Dystrophy. · William Greenlee, PhD, Former VP of Cardiovascular and CNS Chemical Research at Schering-Plough: Dr. Greenlee discussed his experience as an Advisor with Harrington's Therapeutic Development Center. · Julia Vitarello, Founder & CEO, Mila's Miracle Foundation: Ms. Vitarello spoke of her experience as a family advocate for rare disease treatments, with a specific focus on Batten Disease and neurodegenerative diseases. · Jonathan Stamler, MD, President & Founder of Harrington Discovery Institute: Dr. Stamler shared updates about the vision of The Oxford-Harrington Rare Disease Centre in its global quest to advance cures for rare diseases. · Matthew Wood, Professor, University of Oxford & Director, The Oxford-Harrington Rare Disease Centre: Prof Wood spoke of OHC's mission, vision and recent accomplishments. · Diana Wetmore, PhD, Vice President of Harrington Discovery Institute's Therapeutic Development Center: Dr Wetmore summarized Harrington's success in advancing rare disease treatments. We invite you to join us in supporting the OHC and its mission to advance cures for rare diseases. Your support will help us to continue to fund drug discovery and development and provide the resources needed to advance promising scientific breakthroughs into treatments for patients. Together, we can make a difference in the lives of those living with rare diseases and their families. Lean more: https://www.harringtondiscovery.org/OHC