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"During my freshman year at USC, I got sick and ended up at the student health center. Because HHT was listed on my patient history, I received a lot of questions about it from the doctors. Most of them had heard of it but really didn't know what it was or what it involved. When I realized that I couldn't answer their questions and that there were actually doctors who didn't understand the disorder it scared me and I started to educate myself and take control of my own medical. Advocating for myself came with educating myself - I know what I need and I understand what I can and can't do with HHT. I feel a lot more confident when explaining my medical history now." - Emma Hoyle