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Lilliane's Story

Lilliane Grahek, 12, was diagnosed with scleroderma, a rare disease that involves the hardening and tightening of the skin and connective tissues, when she was 2 years old. The disease usually runs its course in three to five years, but the Vancouver girl hasn’t been so lucky. Her disease has been active for most of the last 10 years. With the support of her family, Lilliane lives life with joy and confidence. Lilliane and her mom are active in the local Scleroderma Foundation, advocating for research to find a cure.