An interview with an adult with Hereditary Multiple Exostosis(HME) скачать в хорошем качестве

An interview with an adult with Hereditary Multiple Exostosis(HME)

A truly touching interview where Daina shares her experience living with a bone condition called ‘Hereditary Multiple Exostosis.’ You may remember that I interviewed Daina’s mother ‘Nikki’ in January and now we have Daina in person, sharing her highs and lows, as well as the barriers she faced during her younger years. Please support Daina on her socials; Website: http://www.chronicallymestyle.co.uk Instagram/TikTok @chronicallymestyle. Thank you 💕 ~Time Stamp~ 00:00 Intro 1:23 Q1 Would you mind explaining more about your condition? 1:46 Q2 How do you manage your day-to-day? 2:22 Q3. What was it like growing up with this condition? 3:47 Q4. How did you feel once receiving/hearing the diagnosis? 4:37 Q5. What was it like in school? 6:18 Q6. Did you have support staff? 7:50 Q7. How would you sum up your general experience of school? 8:15 Q8. Tell me about University 10:08 Q9. Do you feel that people understand your condition? 12:25 Q10. What keeps your spirits high? 12:42 Q11. What would you like people to know about you? . . . . . #accessibility #chronicillness #chronicpain #disability #disabilityadvocacy #disabilityadvocate #disabilityarts #disabilityawareness #disabilityblogger #disabilitycommunity #disabilityinclusion #disabilityisnotinability #disabilityjustice #disabilitylife #disabilityrights #disabilitysupport #fashion #stylist #clothes #inclusion #invisibleillness #mentalhealth #motivation #wheelchair #wheelchairgirl #wheelchairuser #school #firealarm #isolation #family #blacklady