Cavernous Angioma Night at Great American Ball Park 2019 скачать в хорошем качестве

Cavernous Angioma Night at Great American Ball Park 2019

The Mayer family, in collaboration with Angioma Alliance, will hold Cavernous Angioma Night at Great American Ball Park in Cincinnati to support cavernous angioma research and education. In June 2011 our son Dylan, at the age of 1, had a seizure and was diagnosed with multiple cavernous angiomas in his brain. He underwent brain surgery July 2011 to remove one of these lesions. After genetic testing we learned that Dylan has the genetic form of this disorder. Cavernous angiomas are abnormal blood vessels in the brain and spine that can hemorrhage and cause seizures, disability, and even death, at any age. About 1 in 200 people have a cavernous angioma and up to one third of these people will have symptoms. To date, there is no cure and there is no treatment other than brain or spinal surgery. Angioma Alliance is a patient-directed non-profit organization founded in 2002 by the mother of a toddler who had several brain surgeries as a result of cavernous angioma hemorrhages. The mission of Angioma Alliance is to inform and support individuals affected by cavernous angiomas of the brain and spine while facilitating improved diagnosis and management of the illness through education and research. Angioma Alliance is the only organization in the US focused entirely on support and research for cavernous angiomas. The organization works closely with patients, families, researchers, physicians, and legislators and is internationally recognized as the leader in advocating for cavernous angioma research. For more information, visit www.AngiomaAlliance.org