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Jo Blesing care training on and off bed. I need carers that are trained Uniquely in my condition. My Story I can’t believe that I am having to prove I am disabled again that hasn’t happened since 2017 . life is tough enough with disability ,without needing to continue reliving and proving how bad life is . I have spent almost 20 years with RAPID ONSET CHRONIC SECONDARY MULTIPLE SCLEROSIS IN MY NECK. Background: I was diagnosed with Multiple Sclerosis in the spine, in 2003. Diagnosed 2003, AND repeat MRI 2012 and in 2019. At the time of first diagnosis I was living in Melbourne and running my own Interior Design business (and a triathlete). I subsequently returned to Adelaide to live to be closer to my family 2004. I am a virtual quadriplegic with full sensation. I am non-ambulant and have no functional hand movement. My left arm has no function but I do have movement in the right wrist and thumb, which allows me to drive my Levo motorised wheelchair by putting a loop around my right hand and attaching it to the wheelchair control. I have managed to drive my wheelchair like this for over 10 years. The problem with this is that I am now developing a severe scoliosis and twisting of the spine as the movement for controlling the wheelchair was coming from my shoulder. Background of Accident: On 28th of January 2020, I sustained bilateral lower limb fractures when my Levo wheelchair malfunctioned when I couldn’t get the funding approval for the replacement until too late . I received treatment at the RAH and was discharged to temporary accommodation at U-City Apartments, which contains required built in equipment to cater for my functional needs in April 2020. I was readmitted to Calvary Hospital on July 2020 with cellulitis of left leg and again discharged to temporary accommodation July 2020 until 20 December 2020. On discharge I was not able to bear weight on my lower limbs for transfers and was mostly bed ridden, due to coccyx pain on sitting. My left leg has been rejoined 1cm shorter than my right leg causing worsening twisting of the spine . Since then, through a lot of therapies and rehabilitation , hard work, pain and perseverance, my team (that I self-manage) andI I have managed to get out of bed full time, retrain my body to be able to sit , and eventually in September 2022 I could drive my Levo motorised wheelchair and re-engage somewhat into the community, celebrated by being invited as a guest appearance for the Bedford Group annual gala. This transpired into being acknowledged with the SA Woman of the Year Award 2022- The Heart Award. Current Background : My situation has taken a dramatic setback in January 2023 when the funding got a Temporary stop for 3 months ,then Temporary cutback I was advised, ,to 12% and it’s almost a year now, deconditioning ,and demeaning . No funding for therapies at all and my condition is worsening again and all the hard recovery from being bed ridden for 12 months is being reversed. I don’t live dwelling on what an absolutely terrible Disability I have, I live by my goals that I set that are a long way into the future where anything is feasible , and I then strive to achieve. I don’t wake up in the mornings hating my condition, I wake up thinking what is next. i know i can be an influence on others having to face extreme disability..