VF Patient Roundtable: Dealing with Vasculitis Cringe Questions скачать в хорошем качестве

VF Patient Roundtable: Dealing with Vasculitis Cringe Questions

0:00 1:55 Introductions 3:42 Cringe Questions: “ How can you be sick when you look so good? / How bad can vasculitis be?” 8:53 Cringe Questions: “ Isn’t vasculitis just a treatable skin disease?” / “Is vasculitis a form of cancer?” 12:41 "Does chemotherapy treatment cause confusion that vasculitis is a form of cancer?" 18:20 "Is it better to call vasculitis an autoimmune disorder?" 19:19 Cringe Questions: “What's the name of that disease you have and what does it do to you?” 27:36 Cringe Questions: “How long will it be for your vasculitis to go away?” / “Is there a cure for vasculitis?” 30:23 Cringe Question: “Is vasculitis fatal?” 40:28 Cringe Questions: “ Why are you always so tired? Is that part of your illness?” / “ Are you sure you’re not exaggerating your symptoms?” 41:25 Powerful quote: “People with rare diseases don’t fake their symptoms. They fake being well.” 44:11 Dr. Banerjee explains why fatigue is a real and common part of vasculitis. 54:15 Cringe Questions: “Can’t you just eat healthier” / Can't you take Vitamins and eat healthy to boost your immune system?” 58:58 Cringe Questions: “Why are you still wearing a mask?” / “Are you wearing a mask because your disease is contagious?” 1:02:04 Cringe Question: “ I didn’t think people of color could get vasculitis.” VF Patient Roundtable: Dealing with the Vasculitis Cringe Questions