Navigating HoFH: Insights from Clinician and Patient Perspective on Today´s Journey скачать в хорошем качестве

Navigating HoFH: Insights from Clinician and Patient Perspective on Today´s Journey

Discover insights from patients and clinicians on navigating homozygous familial hypercholesterolaemia (HoFH). This video highlights the importance of awareness, early detection, and innovative treatments. Hear patient stories that emphasise resilience and advocacy, and learn about future advancements in precision medicine and genetic testing aimed at improving diagnosis and treatment. Highlights: The critical role of awareness and advancements in treating HoFH. The impact of patient advocacy in healthcare. The significance of early detection and initiatives like the Prague declaration. The challenges faced by patients in Lebanon and the need for global healthcare collaboration. The emotional and physical challenges of managing HoFH and the importance of a supportive community. The role of patient ambassadors in sharing experiences and advocating for the HoFH community. The importance of consistent medication adherence, healthy lifestyle choices, and emotional well-being. The benefits of early diagnosis, universal testing, and genetic testing for effective treatment. The promise of novel treatments and future genetic therapies. The power of personal stories in inspiring hope and resilience. Join us as we explore the journey of those living with HoFH and the ongoing efforts to improve their lives through medical advancements and community support. More resources: FH Europe Foundation –https://fhef.org/ HoFH awareness trilogy webinars:    • Towards precision medicine and personalise...      • The golden standards in HoFH: statins, eze...      • The recent trio of treatments in HoFH- PCS...   Latest Clinical Guidelines: EAS 2023 update: https://academic.oup.com/eurheartj/ar... Avery’s Fight –on Facebook:   / fightingforavery