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How Ehlers Danlos Syndrome Affects My Life

My heart goes out to all my fellow Spoonies ❤ Resources: List of EDS doctors by country and state: https://www.ehlers-danlos.com/healthc... The BEST video to understand EDS, MCAS, & POTS:    • Connecting the Dots with EDS in Manag...   Compression socks: https://sockwellusa.com/products/wome... SI belt: https://rstyle.me/+JnBBJuZvzE2NThc4_C... DAO enzyme: https://rstyle.me/+WcIKLw7uvD5aLjQytY... “The Most Common Disease You’ve Never Heard Of” (Podcast featuring researchers finding the genetic marker for hEDS): https://open.spotify.com/episode/2RPo... The 4-Phase Histamine Reset Plan: Getting to the Root of Migraines, Eczema, Vertigo, Allergies and More: https://rstyle.me/+Cpj6jIY7VZ97RVmMCz... Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexityhttps://rstyle.me/+S08Lhs75kXSTNd2dcI... The Spoon Theory: https://ehlersdanlosnews.com/health-i... Timestamps: 00:00 Intro 00:30 Goals for the video 01:21 Thank you 04:08 Hypermobile Ehlers Danlos Syndrome (hEDS) 05:17 How they diagnose hEDS 06:43 hEDS genetic test is coming! 07:14 Mast Cell Activation Syndrome (MCAS) 08:10 How EDS triggers MCAS 08:37 Postural Orthostatic Tachycardia Syndrome (POTS) 09:06 How MCAS, EDS, and POTS are connected 09:43 List of my personal symptoms 11:27 Beginning of my story 11:49 Early symptoms: asthma, allergies, insomnia, sensitivity to light and sound 13:13 Early symptoms: TMJ 13:33 College symptoms: weak immune system 14:17 College symptoms: pain & GI problems 14:36 Worsening insomnia 15:00 Back pain in the service industry 15:47 20’s hip pain, clicking, and sticking 16:07 Hilarious videos of me after surgery 16:55 Traumatic fainting from POTS 18:11 Funny POTS story 19:30 Back injury 24:43 Struggling w/ internalized ableism & shame 25:39 How my social life is affected 36:33 Emotions: validation and hope 37:55 Emotions: grief 40:02 Emotions: fear 40:34 Kids & IVF 41:41 The spoon theory 42:39 Treatment plan 46:24 Outro Music: Epidemic Sound ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ Instagram @stateofkait:   / stateofkait   ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ ✧ FTC: This video is not sponsored. Some product links are affiliate links that allow me to earn a small commission through your purchase. Some products were received in PR. This video is not meant for children