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In this powerful and emotional speech, Dr. Tika, a clinical geneticist, shares heartbreaking stories of children with rare diseases, the struggles of delayed or missed diagnoses, and the urgent need for newborn screening and access to genetic testing in Georgia. Through real cases, she highlights how timely diagnosis can mean the difference between life and death, and calls for collective action to bring hope to families affected by rare conditions. Dr. Tinatin Tkemaladze is a distinguished genetics professor at Tbilisi State Medical University, known for her pioneering contributions to medical genetics and her unwavering dedication to education and research. As a leader in her field, she has played a vital role in advancing genetic studies in Georgia, bridging the gap between scientific discovery and clinical application. Passionate about mentoring the next generation of medical professionals, Dr. Tkemaladze is deeply involved in academic initiatives that promote innovative research and critical thinking. Her work has significantly contributed to the understanding of genetic diseases, making her an invaluable figure in both academia and healthcare. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx