Duchenne Through a Mother's Eyes: Linda , DMD the role of informal carer. скачать в хорошем качестве

Duchenne Through a Mother's Eyes: Linda , DMD the role of informal carer.

Ep3. Duchenne Through a Mother's Eyes: Linda and DMD In this conversation, Leanne Watson speaks with Linda Williams, a mother and primary caregiver to her son Harrison, who has Duchenne muscular dystrophy (DMD). They discuss the challenges and realities of living with DMD, including the impact on family life, the importance of advocacy, and the need for better accessibility and support systems. Linda shares her journey of navigating the healthcare system, the housing crisis, and the emotional toll of caregiving, while also highlighting the joy and hope that can be found in family and community support. LINKS TO RESOURCES. Harrison's pages are: Instagram: @harrison_and_duchenne Facebook: facebook.com/harrisonandduchenne TikTok: @harrisonandduchenne Other links: Carers QLD. https://carersqld.com.au Muscular dystrophy Queensland https://mdqld.org.au Facebook 'Duchenne Australia - Support Group'   / 820692598018113   Chapters 00:00 Introduction to Duchenne Muscular Dystrophy 01:07 Understanding Duchenne and Its Impact 03:33 Life as a Primary Carer 05:56 Navigating Accessibility Challenges 09:00 Changing Life Expectations 11:51 The Role of Advocacy 14:12 Lessons Learned from Diagnosis 17:21 Pivotal Moments in Advocacy 20:23 Finding Joy and Hope 22:45 The Importance of Support 26:19 Essential Resources for Families 28:16 Connecting with the Community