How I found my purpose in my disease | Swapna Kakani | TEDxHuntsville скачать в хорошем качестве

How I found my purpose in my disease | Swapna Kakani | TEDxHuntsville

Swapna Kakani shares in her talk her journey of hope, disappointment, courage and finding purpose in living with a rare disease since birth. Swapna Kakani was born and raised in Huntsville, AL. She is a graduate of Randolph School, and received her Bachelors in Psychology at The University of Alabama at Birmingham. Born with a rare disease, her inspirational life story is one of triumph over chronic illness and of developing individual resilience and self-determination in the face of constant difficulties. Swapna also, this year created Alabama Rare, a grassroots coalition to unite the state around the rare disease population. She currently is working in Washington D.C. for the National Organization of Rare Disorders (NORD) researching federal and state health policies, and advocating on Capitol Hill to ultimately expand care for individuals with rare diseases. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx