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Gaucher Type 2, Palliative Care: We were protecting her from things that weren't right for her.

"What we were doing was actively protecting her from things that wouldn’t be right for her." The mother of an infant shares how electing NOT to choose medical interventions at first felt like she wasn't actively caring for her child and how palliative care helped her understand that 'doing things' wasn't necessarily protecting her daughter. Reframing to see that sometimes less is more. If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.

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