Community Spotlight: Georgina's 10-year UTI battle with Hunner's lesions скачать в хорошем качестве

Community Spotlight: Georgina's 10-year UTI battle with Hunner's lesions

Community Spotlight: Georgina's 10-year UTI battle with Hunner's lesions Trigger Warning: This video includes references to suicidal ideation. This is the first video in our Community Spotlight series, which highlights content on other channels, created by individuals who experience recurrent and chronic UTI. Follow Georgina's journey on her own YouTube channel:    / @chronicembeddeduti   Georgina has lived with severe bladder pain for the past ten years, beginning in her early 40s. Despite debilitating symptoms, she was repeatedly told nothing was wrong. Dipstick tests failed to detect infection, and a standard cystoscopy appeared normal. She underwent Botox injections to the bladder — a treatment that may provide relief to some patients — but in her case, it caused excruciating pain and bleeding. She has since had to self-catheterise, while also managing a hypertonic pelvic floor, constant burning and spasms, and waking 20–30 times a night, rarely getting more than 30 minutes of uninterrupted sleep. It was only after a second cystoscopy that Georgina was diagnosed with Hunner's lesions (ulcers in the bladder) and her painful symptoms were further explained. She has since tried bladder instillations, which offered some initial relief but lost effectiveness over time. Antibiotics have at times been essential, yet have also taken a toll — disrupting her gut and vaginal microbiome and contributing to recurring thrush and bacterial vaginosis alongside ongoing pain from embedded infection. Georgina is now planning to undergo bladder fulguration to treat the lesions, knowing they may recur, and is preparing — if necessary — for bladder removal in the hope of regaining some quality of life. Her story is a powerful reminder of the importance of self-advocacy: asking for thorough urine testing, requesting cystoscopy with hydrodistension when appropriate, and continuing to push for answers, diagnosis, and proper treatment. It also highlights that the diagnosis a patient receives can depend on the clinician they consult with, and that diagnosis may lead to very different treatment recommendations. This is a community spotlight on an existing story shared previously by Georgina. Learn more about why your UTI test may be negative even when you have symptoms: https://liveutifree.com/uti-test/ Read on antibiotic bladder instillations and other chronic UTI treatment methods: https://liveutifree.com/antibiotic-bl... Watch our interview with Professor Malone-Lee on bladder imaging (such as cystoscopy) and how to talk with your doctor:    • Imaging & How To Talk With Your Doctor: Pr...   There is no single approach that will work for everyone with recurrent or chronic UTI. You can watch more patient videos here on our channel, or read more stories over on our website at https://liveutifree.com/uti-stories/ and consider how different experiences may relate to your journey. It’s always best to speak with a clinician before starting any new approach. If you have any questions about the contents of this story, or if you’re interested in sharing your journey with UTIs, we’d love to hear from you! We currently support the process of creating videos in English, French, Italian, German, and Spanish, but don’t hesitate to reach out if you’d like to record your story in another language—we’ll do our best to accommodate. Please get in touch via the contact form on our website at https://liveutifree.com/contact/. About Live UTI Free Live UTI Free is a patient advocacy and research organization. We provide research support, recruitment for research, and free resources for patient and clinician education on topics within women's pelvic health, with a focus on UTI. We do our best to provide patients with information about clinicians who specialize in recurrent and chronic UTI, in different regions. Patients, clinicians and researchers are welcome to reach out: https://liveutifree.com/contact. Disclaimer The opinions presented in this video do not necessarily reflect the opinions of the Live UTI Free team. We do not endorse specific treatment approaches, clinicians or diagnostics methods. The content of this video does not provide medical advice. It is intended for informational purposes only. The medical and/or nutritional information is not a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen. https://liveutifree.com/