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Living with fistulizing Crohn’s disease: Leighann скачать в хорошем качестве

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Living with fistulizing Crohn’s disease: Leighann
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Living with fistulizing Crohn’s disease: Leighann

Meet Leighann, a Crohn's disease patient who discusses her experience being diagnosed with fistulizing Crohn's disease. Leighann shares her personal journey with diagnosis and treatment and provides helpful tips for those living with fistulizing Crohn's disease. __________________________________________________________ Transcript: So I was a junior in college and I had developed a lot of abdominal pain and had weight loss and was really fatigued. Not like I'm tired, more like I cannot physically get up. Things got really bad. I would eat food and I would pee out food. So my parents came and picked me up and that's when we went right to the hospital. When I was in the hospital, they did an ultrasound and saw that there was fluid and debris in my bladder and my pelvis. I think it was the following day they did a CAT scan. And then that night I was diagnosed with Crohn's disease. I was very overwhelmed by the diagnosis because I had never heard of Crohn's disease before. This was the mid-nineties and I called my mom and asked her to go to the library and take out any book on Crohn's disease and bring it to the hospital because I wanted to understand what this meant. It was a lot to handle, but they did determine that I did have a fistula and because of the extent of the inflammation in my small intestine and the bladder fistula, they said that the only option was surgery. During the surgery, they also saw that I had had perineal fistula, which they repaired as well. So coming home from the hospital, I was coming home with both Foley catheter and a cutting seton. Physically I couldn't sit properly, emotionally, I felt just really upset about the prospect of this being my life. I was 20, I didn't really know what forever meant. I requested that the surgeon take the cutting seton out and I wanted to go back to school. It was probably, maybe a year or two after my surgery that I had my first flare and went on high dose steroids, got that under control, and that's kind of what had happened. Up until about six years ago when I had a full obstruction and I had to have another surgery and then went on biologics. And since then, the biologics really are amazing. I didn't know that fistula was part of Crohn's disease. And I would just say for patients or parents of patients, if something's going on and you've got a weird bump or you're feeling off or there's any question whether you think it's part of your Crohn's or not. Ask your gastroenterologist. This is something that is hard to talk about. It's it's a little embarrassing to talk about these things, but it's really important because it's so impactful to your quality of life and your emotional health and you're not alone. Fistulas

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