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NET Patient Day 2022 Part 2 - Panel Q&A Tallaght, Dublin Panel of NET experts take questions from the audience at the NET Patient Day 0:00:00 Presentation of bowls 0:04:30 Qu 1 - Do QR codes work on the CoE feedback form? 0:05:33 Qu 2 - What exactly does Creon do? 0:08:52 Qu 3 - Is Affinitor/Everolimus regularly prescribed? 0:11:30 Qu 4 - Are there any foods that should be avoided? 0:15:11 Qu 5 - Should vegetables be avoided for 5HIAA test? 0:17:24 Qu 6 - How long can Zomita be used and are there side-effects? 0:19:08 Qu 7 - Is Creon ok to use as my pharmacist said I shouldn't use it? 0:22:34 Qu 8 - How can I move from daily short-acting SSA to long-acting SSA? 0:26:03 Qu 9 - Can a NET patient take weight loss injections? 0:29:12 Qu 10 - Do you need to fast before CgA blood test or stop antacid tablets? 0:33:06 Qu 11 - What is currently happening with the Treatment Abroad Scheme? 0:37:23 Qu 12 - Can a letter be issued automatically to advise that a patient is at risk of Carcinoid Crisis? 0:42:00 Qu 13 - Should an ambulance take me to SVUH in case of emergency? 0:43:36 Qu 14 - Do SSA injections work for DIPNECH patients? 0:46:18 Qu 15 - Does PRRT work for different types of NET? 0:47:47 Qu 16 - With atrophic gastritis and stomach NETs could PPI have caused this? 0:50:15 Qu 17 - How does Rotterdam compare to Uppsala for PRRT under the Treatment Abroad Scheme? 0:53:43 Qu 18 - What lifestyle changes do I need to make to live with NETs? 0:55:26 Qu 19 - Why has my SSA injection been reduced from 28 to 21 days? 0:58:14 Qu 20 - Can the emergency services be educated about Carcinoid Crisis? 1:04:00 Qu 21 - What is the difference between a PET scan and Gallium PET scan? 1:07:25 Qu 22 - Can NETs be detected earlier, e.g. with a test? 1:12:10 Qu 23 - Why doesn't PRRT always work and what are the side-effects? 1:15:46 Qu 24 - How can we make the Crisis Card work better? 1:17:09 Qu 25 - Can NET patients have a reaction to the Covid vaccine?