Epidermolysis Bullosa - The Worst Disease Nobody Has Heard Of скачать в хорошем качестве

Epidermolysis Bullosa - The Worst Disease Nobody Has Heard Of

Epidermolysis bullosa (EB) is a group of rare genetic rare disorders that manifest as blistering or erosion of the skin. In some cases, the epithelial lining of other organs can be affected. There are several types of EB and in the more severe forms of the disease, blistering can lead to deformities including fusion of the fingers and toes, secondary skin infections, sepsis and even death. At present there is no product approved for the treatment of EB and care is often focused on replacement of bandages to protect the skin from tearing and infection. The disease is extremely difficult to manage and in most children, the pain is constant and intense. For more information about EB, visit www.Debra.org or www.sderm.com