Mitch's story - Living with Early Onset FSHD скачать в хорошем качестве

Mitch's story - Living with Early Onset FSHD

Mitch was diagnosed with Early Onset FSHD at 18 months old—a condition that slowly affects everything he does. But that hasn't stopped him from pursuing his passions. From wheelchair sports to university design studies, Mitch embodies determination. His mum Rachael shares how FSHD has shaped their family's journey and the everyday battles most people never see. Their powerful story sheds light on what it means to live with Early Onset FSHD—fighting for independence and the hope that one day, a cure will change everything. The FSHD Global Research Foundation is working tirelessly to raise funds for critical medical research, aiming to fast-track treatments and ultimately find a cure. Their efforts extend beyond the Alberts to help thousands of others affected by this condition. Together, they're creating a brighter future for those living with FSHD.