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From Liver Failure to Founding a PBC Charity

After years of exhaustion, pain and being labelled a hypochondriac Colette was diagnosed with primary biliary cirrhosis (PBC) following liver failure. Faced with fear, uncertainty and no available support, she turned her experience into action—connecting patients, working with doctors and building a charity so no one would feel alone again. This video is part of Global Patient Voices, a library of short films featuring patients and caregivers sharing real experiences of illness, care, and clinical research. These are lived experiences, shared in real voices, to help people feel less alone, make informed decisions, and ensure clinical innovation stays grounded in real life. Global Patient Voices is part of the pRxTrialPort project, supporting more transparent, patient-centred clinical research. Individual experiences shared in this video reflect personal perspectives and should not be taken as medical advice.