Brunilda Ternova e Juri Romagnoli parlano della sindrome di Ehlers e Danlos. скачать в хорошем качестве

Brunilda Ternova e Juri Romagnoli parlano della sindrome di Ehlers e Danlos.

Intervista realizzata dal giornalista FABIO TAUTON ------------------------------------------------------------------------------------------- Brunilda Ternova è scrittrice, poetessa, pubblicista, mediatrice culturale, interprete e traduttrice freelance per le lingue albanese (lingua madre), italiano e inglese. SOSTIENICI TRAMITE BONIFICO: IBAN: IT98F0760102400001022587784 intestato a: BRUNILDA TERNOVA. https://www.gofundme.com/f/ehlers-e-d... ---------------------- My name is Brunilda Ternova, a cultural mediator, freelance interpreter and translator (Albanian, Italian, English) . I have a rare - underestimated - disease called Ehlers and Danlos Syndrome that doesn't have a cure and is caused by a mutation of the various genes responsible for the synthesis, maturation and organization of the various collagens. I belong to the type of Classic Hypermobile - the one even more difficult to diagnose since the group of genes responsible are mostly unknown to scientists, and still under study. I am looking for medical organizations that can help me with research to find therapies for my disease with Stem Cell transplantation and to stop the progressiveness (also my vision is deteriorating progressively) . Together with other patients we need to create a private clinic that deals exclusively with Ehlers-Danlos patients, and to carry on medical-scientific research, since we need real treatments, therapies and real solutions to our condition, which it becomes incapacitating over the years.Support us by bank transfer: IBAN: IT98F0760102400001022587784 Country Residence: ITA ABI: 07601 CAB: 02400 BIC: BPPIITRRXXX On behalf of Brunilda Ternova. Bank: Banco Posta spa (Italy) I hope my voice can reach people, foundations and institutions that are able to help me in my project! Thank You!