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Behavioural scientist Eden Robertson from UNSW, Australia, shares with us her work into improving the lives of caregivers of children with a Developmental Epileptic Encephalopathy, with clear messages: the Developmental & Epileptic Encephalopathies awfully impact caregivers and they must be provided with education and support. This is part one of two with Eden. ------------------------------------------ More about Eden: 👇🏻 https://www.torierobinson.com/epileps... ------------------------------------------ Chapters 📖 00:00 Intro 01:00 What are Developmental & Epileptic Encephalopathies? 02:00 Are they all genetic? 04:11 Why do caregivers need support when it comes to DEEs? 05:21 How are you doing it? Ease of access to information for caregivers. 08:10 The GenE Compass project for caregivers 09:13 Common questions & guilt felt by caregivers ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 👉🏻 T-shirts, mugs, notebooks: https://epilepsy-sparks.creator-sprin... ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: / torierobinson ------------------------------------------ 📲 Join me on social media! Twitter: / torierobinson10 LinkedIn: / torierobinson Instagram: / torierobinson10 Facebook: / torierobinsonspeaker Website: https://www.torierobinson.com