Sacred Moments in Pediatric Hospice - Caregiving the Medically Complex скачать в хорошем качестве

Sacred Moments in Pediatric Hospice - Caregiving the Medically Complex

This week in our pediatric hospice journey, we share some of the challenges and sacred moments that come with caring for a medically complex child living with spastic quadriplegic cerebral palsy, a congenital heart defect (AVSD), and other serious health conditions. From managing leg pain, constipation, and skin breakdown to witnessing the beauty of nonverbal communication, every moment reminds us of the depth of love, resilience, and connection in special caregiving. We also touch on the differences in care between medically complex children in active treatment and those receiving pediatric hospice care — including changes in equipment use, goals of care, and what comfort truly means for families. As a registered nurse and legal guardian of this child, who was formerly in foster care, I share our journey to raise awareness, support other caregivers, and provide an honest look into the realities of pediatric hospice and complex medical care. 💜 Topics covered in this video: Briefly touch on Pediatric hospice care vs. medically complex non-hospice care The challenges of pain, constipation, and skin issues in hospice The "wins" he has with using nonverbal communication 📺 Subscribe for more real-life stories, nursing insights, and caregiving reflections: 👉 [   / @specialcg-ourhospicejourney  ] Superman short:    • Every day, he lights up my day. A resilien...   Email: [email protected] #Hospice #MedicallyComplex #cerebralpalsy #spasticity