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Have you ever wondered: What is schwannomatosis? You’re not alone — and we’re here to help. Hosted by Kate Kelts, RN, BSN, a dedicated nurse at the Children’s Tumor Foundation (CTF), the Big Questions about NF series provides clear, compassionate answers to the questions patients and families ask most often. From "What is NF?" to "Will I lose my hearing?" and beyond, Kate breaks down the facts you need to know. 🔔 Subscribe & click the bell to stay informed and empowered: https://www.youtube.com/user/ctforg?s... 🔎 Popular searches this series covers: What is NF? | NF1 café au lait spots? | NF2-SWN and NF2 explained | Schwannomatosis symptoms | Neurofibromatosis treatment options | Hearing loss and NF | NF tumors | NF1 and autism About CTF: The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF. Everything we do is to bring treatments to patients as we work toward a cure. By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis, collectively referred to as NF. Our patient-first collaborative approach accelerates drug development and brings life-changing therapies to patients faster, driven by our mission to end NF. What is NF? NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF affects 1 in 2,000 births and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all races, ethnic groups, and genders equally. The types of NF include neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2 (NF2). Visit our website at https://www.ctf.org/ Donate today at https://www.ctf.org/ways-to-give/ Follow us on our social media platforms: Facebook - / childrenstumor Instagram - / childrenstumor X - / childrenstumor LinkedIn - / children's-tumor-foundation TikTok - / childrenstumor #EndNF #Neurofibromatosis #NF1 #NF2 #Schwannomatosis #ChildrensTumorFoundation #NFResearch #BigQuestionsAboutNF #health #life #questions #diagnosis #help #medical #question