Kristina’s story: Genetic testing, hope, and support in the face of familial Alzheimer’s genetics скачать в хорошем качестве

Kristina’s story: Genetic testing, hope, and support in the face of familial Alzheimer’s genetics

In this interview, we hear from Kristina, a member of the Youngtimers community living in Philadelphia whose son and husband were her inspiration to know whether she carried the genetic mutation that has plagued her family. In this interview, Lindsay, founder of Youngtimers, talks with Kristina about: Kristina’s decision to learn her genetic status Finding a genetic counselor What it was like for Kristina to talk to family about her results 00:00 Intro 01:02 Kristina's situation 02:03 The family history that led Kristina to choose genetic testing 04:12 Kristina's thought process in deciding to get genetic testing 06:19 Family planning through IVF with PGT 08:06 Ways to prepare for genetic testing 09:24 Choosing a support person for genetic testing 10:42 Finding a genetic counselor 12:03 How Kristina navigated talking to family and friends 13:44 Strategies for sharing results with family and friends 15:52 What it's like for Kristina knowing her genetic status 16:56 Reasons for hope and things to be grateful for 18:41 Living with your results 20:56 Advice for someone waiting for their results About Youngtimers Youngtimers is a supportive community for individuals and families facing the realities of familial Alzheimer's disease (FAD). We promote community, education, support, and research to improve the lives of people who are symptomatic, at-risk, or providing care and support to those in this community. We believe in living well, finding hope, feeling the feelings, and showing up for one another—because together, we’re stronger. 🧠 Learn more at: https://youngtimers.org