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Started the day dropping off yet another car to a garage for repairs, then took Daniel to Big Y so we could get some groceries. A break after that, and Daniel and I headed down to Guilford CT to see Dr. Testa, his neurologist. I had no nursing help today, so I was pretty tired when the end of the day rolled in. About my channel....... My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. The deformity happened due to a virus called CMV, or cytomegalovirus. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 17 years. We are a family of 5 from Sandy Hook, CT and this is our journey. Every day is full of new things that we don’t expect. I am Julie, Daniel’s Mom. I left my full time career as an HR Director 11 years ago because Daniel needed me. The struggle, the sacrifices, the sibling love, and miracle after miracle. Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc. Julie Hasselberger Subscribe to this channel / @jhasselberger My blog site about life with Daniel http://www.raisingdanielhasselberger.... twitter @jhasselberger Instagram jhasselberger facebook Julie Hasselberger WE LOVE MAIL!!!! Julie Hasselberger PO Box 3611 Newtown, CT 06470 ~-~~-~~~-~~-~ Please watch: "HANGING BEACHBALL" • HANGING BEACHBALL ~-~~-~~~-~~-~ #caregiver #specialneeds #familyvlogs #disabled #juliehasselberger #inspire #disabledchild