Life, Unexpected: When A Child Has A "One In The World" Genetic Condition - Part 1/4 | Full Episode скачать в хорошем качестве

Life, Unexpected: When A Child Has A "One In The World" Genetic Condition - Part 1/4 | Full Episode

Episode 1 introduces families navigating some of the most difficult realities of paediatric palliative care. We meet nine-year-old Irfan, whose parents recount his journey from a healthy, bubbly infant to a child living with a rare genetic disease that has left him non-verbal and dependent on round-the-clock tube feeding. The episode also follows Rae and Ryan, parents to 21-year-old Rachael, who has lived with a rare chromosome disorder since birth. As Rachael’s condition deteriorates, they face an agonising decision — whether to continue life-sustaining measures or allow her life to come to a natural close. Through these families, the episode explores love, loss, and the weight of choices no parent ever expects to make. WATCH MORE Life, Unexpected:    • Life, Unexpected | Full Episodes   00:00 Introduction 02:22 Doctor visits Irfan at home 05:34 Discovering Irfan's condition 12:51 Star PALS' first patient 16:28 Remembering Edwin Chew 18:26 A "one in the world" genetic condition 23:17 Travelling the world with Rachael 25:59 Things take a turn for the worse 27:46 Making a difficult decision 32:05 Music therapy for Rachael 35:49 Irfan's music therapy 40:06 Rachael returns home 41:45 To "Allow Natural Death" 45:01 In the next episode =========== About The Show: Life, Unexpected Season 2 offers an intimate look at paediatric palliative care, following families and care providers as they face illness, difficult decisions, and life’s uncertainties. =========== #CNAInsider #LifeUnexpectedCNA #Singapore #Illness #Caregiver #Paediatric #PalliativeCare #RareDisease For more, SUBSCRIBE to CNA INSIDER! https://cna.asia/insideryoutubesub Follow CNA INSIDER on: Instagram:   / cnainsider   Facebook:   / cnainsider   Website: https://cna.asia/cnainsider