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Neurofibromatosis (NF) is a rare and complex genetic condition with no cure and few treatment options. The journey from diagnosis through to treatment is challenging and most of what people will experience is unknown.The impact of NF changes with each stage of life and no two cases are ever the same. There is no way to know when or where a tumour may form, how it may impact function, or if it will become malignant (cancerous). The only constant is its unpredictability. We are called the Children’s Tumour Foundation because NF is most often diagnosed in childhood, but it is a lifelong condition, and we are committed to supporting and finding treatments for everyone who lives with Neurofibromatosis or Schwannomatosis. If you would like to support the Children's Tumour Foundation to you can donate to the Foundation here: https://www.ctf.org.au/donations To support in another way check out our get involved page: https://www.ctf.org.au/page/126/get-i... Thank you for your support.