Parent Project Muscular Dystrophy is Almost 20 Years Old скачать в хорошем качестве

Parent Project Muscular Dystrophy is Almost 20 Years Old

Parent Project Muscular Dystrophy (PPMD) was founded in 1994 by president and CEO Pat Furlong and other parents and grandparents of boys with Duchenne. At that time, the scientific and clinical understanding of Duchenne was minimal. That is no longer the case and that is largely due to PPMD's efforts.. PPMD is recognized around the world as the leader in the Duchenne community. Because of PPMD's efforts, patients with Duchenne are getting access to better care and are enrolled in a number of clinical trials. In addition, PPMD has been a leading force in changing the way regulatory and legislative bodies view orphan drugs and rare diseases. While there is still no cure or treatment for Duchenne, the 20 years of PPMD advocacy has transformed not just Duchenne families but the entire landscape of the rare disease community. For more information about Duchenne and PPMD, visit www.parentprojectmd.org