Having a child with Edwards' syndrome (trisomy 18) | NHS скачать в хорошем качестве

Having a child with Edwards' syndrome (trisomy 18) | NHS

Three families tell their story of what it is like to have a child with Edwards' syndrome. Edwards' syndrome, also known as trisomy 18, is a rare but serious condition. A baby with Edwards' syndrome has 3 copies of chromosome number 18 instead of 2. This affects the way the baby grows and develops. This video contains sensitive content that some may find upsetting. 00:00 - Diagnosis 02:09 - Memory box 03:10 - Mosaicism 05:13 - Processing results 06:50 - Life now 08:08 - Planning for end of life 09:22 - Telling a sibling 10:28 - Building further memories 11:12 - Being prepared for the future 12:32 - Grief 15:42 - Family 16:07 - Support You can find out more about Edwards' syndrome at https://www.nhs.uk/conditions/edwards... You can get support and advice from charities such as Soft UK https://www.soft.org.uk