Roger Packer, MD: Synodos for NF1 is Changing the World for Low Grade Glioma Patients скачать в хорошем качестве

Roger Packer, MD: Synodos for NF1 is Changing the World for Low Grade Glioma Patients

Roger Packer, MD, from Children’s National Hospital in Washington, DC, organized an NF1 Low-Grade Glioma (LGG) meeting in Bethesda, MD, on Feb 19-20, 2019. NF1 LGG are brain tumors that 25-30% of NF1 patients, especially in the pediatric population, are at risk of developing. The scope of the meeting was to gather experts in the NF1 LGG field and look at new data emerging from initiatives like the Children’s Tumor Foundation Synodos LGG projects among others. To enable Closed Captioning, click the CC button. What is the Children's Tumor Foundation? Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors. Visit our website at https://www.ctf.org/ Donate today at https://www.ctf.org/ways-to-give/ Follow us on our social media platforms: Facebook -   / childrenstumor   Instagram -   / childrenstumor   Twitter -   / childrenstumor   LinkedIn -   / children's-tumor-foundation   #endnf #nf1 #nf2 #nf2swn #swn #childrenstumor #neurofibromatosis #schwannomatosis #nervetumor #tumor