Webinar on Addressing the Needs of People with Extremely Rare Bleeding Disorders скачать в хорошем качестве

Webinar on Addressing the Needs of People with Extremely Rare Bleeding Disorders

This recording is part of EHC's continued efforts following Rare Disease Day 2025 to highlight and address the needs of people living with extremely rare bleeding disorders. In this EHC European Rare and Inhibitor Network (ERIN) webinar, held in collaboration with EAHAD, we bring together patients and healthcare professionals to explore common challenges, share personal experiences, and discuss potential solutions. The session includes valuable perspectives from both the patient community and expert clinicians, fostering open dialogue and deeper understanding. Featured Speakers: Dr Saskia Schols, Internist-Haematologist, Radboud University Medical Centre, The Netherlands Helen Tate, Patient Representative Christina Vösl, Patient Representative Whether you're a healthcare provider, patient, caregiver, or advocate, we hope this conversation provides insight and encouragement for your work and journey. Thank you for being part of this important exchange.