Research in healthcare is without patients: Lucien Engelen at TEDxNijmegen скачать в хорошем качестве

Research in healthcare is without patients: Lucien Engelen at TEDxNijmegen

Lucien Engelen takes a new approach on research for healthcare. From traditional research (asking questions, observing) to crowdsourcing (co-creation) including financing it, so patients will be hireing researchers. Nowadays most research is being designed without the patients at the table. He provided us with new ideas about patient-centred healthcare using his internationally acclaimed experience in designing and inventing new collaborative healthcare platforms in Europe: communication and compassion for care-driven programmes that virally spread new concepts, which last and become powerful and independent holistic approaches in medicine. Lucien proposed a paradigm of connecting three important worlds: Patients -- Researchers -- Business. What is the design we should use to change and improve? By finding the right directions, since "research without the targeted groups at the table is like driving being blindfolded", he said. Crowdfunding and crowdsourcing health research by patients are promising, new avenues worth following. MedCrowdFund.org is a non-profit platform (run by Radboud University Nijmegen Medical Center) that can unify these three worlds. It's a community site for patients to publish and fund their research ideas. It consists of the following, related projects : 1) MedCrowdFund™ is a web-based research tool for patients. It is all about how to improve a patient's life on a "daily basis" and to create a simple-to-use website to spread the viral message through social media and help achieving a better life, step by step, for those affected by a particular disease. 2) MedCrowdPitch™ is a virtual place where researchers can upload a picture of themselves and patients can choose the researcher who is most suited to help move forward the knowledge and needs based or their disease. 3) MedCrowdStart™ is a website wich allows people to manage a patient-driven project The impact of new communication paradigms, such as social media and transparency of performance is just as underrated as the role of e-health is overrated.E-health for Lucien stands for "empowered Health : We should think big, act small, dare to fail, stop talking ...and start acting NOW" . Thank you, Lucien for inspiring all of us! Just to mention some of his many duties: he is Director of the Radboud REshape & Innovation Center at Radboud University Nijmegen Medical Center, Head of the Regional Acute Healthcare Network, founder of TEDxMaastricht 201,1 & 2012 TEDxNijmegen 2013 and TEDxRadboudU 2012 & 2013 and faculty member of Singularity University FutureMed.