EP. 3 | DYSTONIA EUROPE - HOW IT ALL STARTED | Alistair Newton | DDays 2018 скачать в хорошем качестве

EP. 3 | DYSTONIA EUROPE - HOW IT ALL STARTED | Alistair Newton | DDays 2018

In this video Alistair Newton shares how Dystonia Europe started. The journey of dystonia europe started in 1992, one year before the official founding in Spoleto, June 1993. Just like an international express train, the route we have followed since then has taken us through many countries and cities, over more than 25 years. Brussels in april 2018 will be only our latest stop. Many people have travelled on our ‘train’ and some of them have been replaced by others along the way. together, we have achieved many successes and overcome many challenges. Dystonia was still not well known in 1992 – and dystonia patient advocacy was in it's infancy in our continent. Across Europe, only a few patient groups had been formed, and some of them were very new. Some focused on only one type of dystonia – torticollis, blepharospasm, dysphonia...... International communication and partnership was badly needed. The Movement disorder society (MDS) held its second congress for specialists in Munich in 1992. Workshops for a few delegates from patient organisations took place, as part of a satellite meeting alongside the medical sessions. This was the first time that national dystonia delegates from different european countries had ever met together. From that beginning, funding was obtained for two small planning meetings. the more established national organisations from seven countries (France, Italy, Netherlands, Norway, Spain, Sweden, United Kingdom) were invited to send delegates to discuss the formation of a European Dystonia Federation. We have come a long way from Munich 1992, and the journey continues... s o c i a l m e d i a: FACEBOOK | www.facebook.com/dystonia.europe/ INSTAGRAM | @dystoniaeurope TWITTER | @dystoniaeurope WEBSITE | www.dystonia-europe.org RELEVANT POST | http://bit.ly/abstractbookddays2018 LATEST POST | http://bit.ly/Norway25Years i n q u i r i e s: [email protected]