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Occipital Nerve Stimulator Operation with an AnkerStim for Cluster attacks - ONS My journey: A glimpse in the life of a Cluster Robot – Chronic Cluster patient. I have been a Cluster patient since my 14th, official diagnosis did not come until I was 19. Since my 27th an official cluster robot (Occipital Nerve Stimulator, aka Neurostimulator since 2020) Through the vlog I hope to help other Cluster patients. The vlog is informative and based on my personal experience. Everyone might perceive the operation(s), recovery, and effect differently. My personal experience might give an insight for the international Cluster headache community. The vlog was made for other Cluster patients thinking of getting a similar operation executed or for the family/friends of Cluster patients who would like to understand a little more about the operation. Before the operation, a good week would be 4 attacks a week for me. On average I would take 24 Sumatriptan injections a month. During bad periods days of 15 attacks and injections in 48 hours was not uncommon at all. After years of medication and attacks I was not able to sport/exercise anymore. I have tried every preventative medication available and oxygen sadly the only things that worked for me where the Sumatriptan injections. Now 5 months after the 1st operation the daily attacks have passed. I do occasionally get an attack, and still sometimes 2 days of 15 attacks. However, this is about once every 2 weeks. Comparing this to what was before, it means I have my life back! I started running and exercising again and am almost able to run 3 times a week 5 km. I am not cured, and my life is still greatly affected by the cluster attacks, but the quality of my life is just so much better! I hope to help and inspire others through the vlog, I am open to answer any questions. Please feel free to leave comments or contact me personally if you have questions. Best Wishes Marion Vörgers – AKA Cluster Robot The Netherlands