Infantile spasms - Parental information - скачать в хорошем качестве

Infantile spasms - Parental information -

Infantile Spasms – A Guide for Parents Infantile spasms (also known as West syndrome) are a rare but serious form of epilepsy that typically begins in infants during their first year of life—most commonly between 3 and 8 months of age. Though the seizures may appear subtle, their impact on a child’s developing brain can be significant if left untreated. Early recognition and prompt medical attention are essential to improving long-term outcomes. This video is created especially for parents, caregivers, and families to empower them with the knowledge and confidence needed to take early action. In this video, we explain: What are Infantile Spasms? Learn how infantile spasms differ from other types of seizures and why they are considered a medical emergency. How to Recognize the Signs Spasms may appear as brief head drops, sudden body stiffening, or subtle jerks—often mistaken for normal baby movements, colic, or startle reflexes. Knowing what to watch for can make a critical difference. When and Why to Seek Help Immediately The longer the delay in treatment, the higher the risk of developmental regression and long-term neurological impact. We emphasize the urgency of early intervention. Diagnosis and Investigations Understand the role of EEG (Electroencephalogram), MRI, and other tests in confirming the diagnosis and identifying the underlying cause. Treatment Options We outline evidence-based treatments including hormonal therapy (ACTH, oral steroids), vigabatrin, and other antiepileptic drugs, as well as the possibility of surgical options in select cases. Prognosis and Outcomes Learn how early diagnosis and treatment can improve developmental outcomes. We also discuss long-term considerations such as ongoing therapy, developmental follow-up, and family support. Support for Families Facing a diagnosis of infantile spasms can be emotionally overwhelming. We offer reassurance, guidance on connecting with healthcare providers, and direction toward support resources for families navigating this journey. Every parent deserves to know that early detection and timely treatment can change the course of their child’s life. This video aims to bring clarity, comfort, and confidence to families during a critical time. If you suspect your child may be experiencing spasms, do not wait—consult your pediatrician or a pediatric neurologist immediately.