Answers from the Experts: Quarterly Q&A скачать в хорошем качестве

Answers from the Experts: Quarterly Q&A

October 2020 - Finding answers to your questions about cutaneous lymphoma and its treatments can be challenging. These open question and answer events provide access to expert clinicians to respond to your questions about cutaneous lymphoma. (Click "See More" for questions and timestamps) Clinical Panel Frank Glass, MD, George Washington University School of Medicine & Health Sciences Craig Okada, MD, Oregon Health & Science University Q&A Timestamps 00:02:21 Why is mycosis fungoides considered an indolent disease? 00:05:08 I was diagnosed with LyP (lymphomatoid papulosis) 5 years ago. I have also had a rash that resembles patch MF for 3 years. My doctor has not biopsied it, but said that anytime a patient with LyP presents with a rash like this, she assumes MF. Does this qualify as a diagnosis? 00:07:26 What is LyP (lymphomatoid papulosis)? 00:08:50 I have CTCL as well as microscopic colitis, both of which involve lymphocytes, is there a relation there? 00:10:31 A PET scan showed a lymphoid infiltrate in my throat. My doctor believes it is related to my CBCL. Is this possible? 00:12:32 Will I need to continue light therapy for the rest of my life? (I am 76, was diagnosed with MF, and have been on Valchlor) 00:15:10 I have follicle center CBCL, originally treated with radiation. A small recurrence was treated with a intralesional steroid. Should I expect the lesions treated with steroids to recur? 00:16:54 I have stage 4b Sezary syndrome, and have become increasingly fatigued with poor quality of life. Do you have any suggestions for these symptoms? Would you recommend CBD? 00:22:12 I was diagnosed with MF about 4 years ago by biopsy. A second opinion confirmed that it is indolent, but I haven't consulted with a lymphoma specialist or a hematologist. Should I be seen by these specialists in concert with my dermatologist? 00:28:36 What are your views of using light therapy at home? 00:31:58 How much do home light panel cost, and does insurance ever cover it? 00:34:15 My husband was diagnosed with MF and was using fluocinonide before switching to betamethasone. Within a week he had fatigue, lack of strength and trouble breathing. Could this be an HPA (hypothalamic–pituitary–adrenal) axis issue? 00:37:53 My daughter is 7 years old and was diagnosed last week with hypopigmented MF. How commonly does this condition spread to other organs? 00:41:07 Can CBCL spread to internal organs? 00:42:25 My dermatologist told me to get direct sunlight outside. Am I being undertreated? Does everyone need a machine, or need to go to a cancer center? 00:46:12 I am in my mid-30s and was diagnosed with MF last year, but have been getting lesions since my teenage years. I am stage 1a, but have had a swollen lymph node since I was 21. Should I be worried? 00:48:20 My 7 years old daughter with hypopigmented MF has swollen nodules under both of her armpits. Should I request a scan? 00:51:05 I had a rash that was originally diagnosed as Sdrife (Symmetrical drug related intertriginous and flexural exanthema), then called MF. I was then told that it is actually a drug induced reaction because the T-cell clonality proliferation showed no evidence. What should I do, should I ask for a second opinion? 00:58:11 Is it OK to take vitamin D with lymphoma?