Holly LaPrade | In Pursuit of a Cure 2025 скачать в хорошем качестве

Holly LaPrade | In Pursuit of a Cure 2025

Meet Holly LaPrade, a writer, wife, stepmom, and longtime FOP community member. Diagnosed with fibrodysplasia ossificans progressiva (FOP) at 16, Holly has built a vibrant, fulfilling life—despite the challenges of this ultra-rare condition. In this powerful video, Holly reflects on her journey with FOP, how connecting with Jeanie Peeper and the IFOPA shaped her path forward, and why continued support for research is so critical. 🧬 Learn more about the 2025 In Pursuit of a Cure Day of Giving: https://ifopa.org/curefop Your gift helps move research forward and gets us one step closer to a cure. 🫶 Donate: https://ifopa.org/give 🌱 Start a fundraiser: https://ifopa.org/ipoac-2025-communit... 📝 Get instructions for translating YouTube video subtitles: https://ifopa.org/instructions_for_tr... --------- 💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: https://ifopa.org/what_is_fop 🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: https://ifopa.org/about_ifopa 👋🏽 CONNECT: https://fb.com/IFOPA   / cure_fop     / ifopa     / international-fop-association   📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: https://ifopa.org/connect #InPursuitOfACure #CureFOP #FOPawareness #RareDisease #DisabilityAdvocate #FOPResearch #FOPCommunity #IFOPA