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For patients living with rare and complex diseases, navigating the healthcare system can be an isolating and frustrating experience, especially when the condition is poorly understood by medical professionals. In our latest patient interview, we had the opportunity to speak with Maurizio De Angelis, a talented medical illustrator based in London, who was diagnosed with lymphangiomatosis as a child. Maurizio’s story is one of perseverance and innovation. After years of unexplained symptoms and limited medical answers, he used his professional expertise in medical illustration to analyze his own scans and visually communicate what was happening inside his body. His 3D models and illustrations provided powerful tools to advocate for the care he needed and later, to help other patients do the same.