Scientific Session and Patient Perspective Panel 3: Amye Leong, Healthy Motivation скачать в хорошем качестве

Scientific Session and Patient Perspective Panel 3: Amye Leong, Healthy Motivation

Amye Leong shares her story of being diagnosed with rheumatoid arthritis at age 18 --and later with Sjögren's syndrome and osteoporosis -- and her journey to become a patient advocate, speaker and author who defies disability. About her role as the international spokesperson for the Bone and Joint Decade, Leong says, "One of things I have been a strong advocate for is the engagement of patients at the research level. And that sounds really bizarre: 'We're going to study you; we donít want to talk to you about your cells!í But I would propose to you that when you engage us in the development of research design, we will open your eyes in ways that you will find very beneficial."