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Self-Advocacy in Health Care

In this workshop the presenters cover the importance of self-advocacy in health care settings and ways to support youth and adults with intellectual and developmental disabilities to communicate with health care providers and be actively involved in health decisions. It includes discussion of existing tools to help plan for and engage in health care appointments. This workshop is for anyone with an intellectual or developmental disability and/or their caregivers. Presenters: Wanda Mahoney, PhD, OTR/L, Washington University School of Medicine, Associate Professor, Occupational Therapy and Medicine Katie Walbrun, OTD/S '21, Program in Occupational Therapy, Washington University School of Medicine 00:00 Introduction 02:48 What is self-advocacy in health care? 08:47 Improving communication through self-advocacy 15:04 What you should bring with you to a doctor's appointment 16:21 What you should do if you don't understand what the doctor is saying 17:15 Why it's important to participate in your doctor's appointments 17:56 What to do if your doctor is speaking to your support person or parent instead of speaking to you 20:32 Today's healthcare visit form https://www.lifecoursetools.com/lifec... 26:53 Preparing for your doctor's appointment Direct video link:    • H-CARDD "Going to the Doctor" - Andrew's S...   34:14 Practice filling out the Today's Healthcare Visit form before your visit Direct video link example 1:    • Module 1: Optimizing Primary Care of Peopl...   Direct video link example 2:    • Module 2: Fostering Communication between ...   48:38 How you can feel more comfortable with your health care team 51:59 Tips for prioritizing concerns for your annual exam appointment 53:24 How parents of adults can still help their child prepare for their doctor's appointments Please email [email protected] if you would like to receive a copy of the handouts from this event. St. Louis Arc website: https://www.slarc.org/ St. Louis Arc calendar of events: https://www.slarc.org/programs/calend... St. Louis Arc weekly enewsletter sign-up: https://www.slarc.org/get-involved/si... Connect with Us:   / stlouisarc     / stlouisarc     / stlouisarc   #StLouisArc #SelfAdvocacy #Healthcare